Being a heart mama is not something anyone aspires to be, but it is something that a few of us become. We didn't sign up to care for a heart baby, but I'd like to think that a greater power hand picked each and every one of us to care for these amazing children. I am a heart mama, and although it is extremely difficult, I can say that it has been the most rewarding experience of my life. My daughter Camila was diagnosed with a congenital heart defect along with a few other abnormalities in utero. To say that it was devastating is an understatement. No parent out there should have to hear doctors tell you about your childs life threatning condition. No parent out there should have to ever decide "how far" they wish to go to save their child. No parent should EVER have to sign a DNR before going into the OR to have a baby. Three open heart surgeries, a few cath procedures, and many hospitalizations later we have a "healthy" 15 month old baby. I say "healthy" because my little warrior's heart will never be "fixed". Camila's condition is life long, and although she may look as healthy as any other child out there, the truth is that she is not. Her heart will eventually deteriorate and the doctors will have to go in there and "fix it". My journey as a special needs mom has just began, but this little person that I adore with all of my heart, has taught me more in her 15 months of life than I have learned my entire life. Sometimes, at night, I just sit and watch her with a smile. I think about how beautiful she is and how I am so lucky to be her mom. Every smile, every kiss, every milestone, no matter how late it is reached, I take it in with such love and appreciation. From her I have learned how to be brave, strong, and resilient. I've watched her master these traits in her short life. Because of her i know that I cannot possibly be ordinary, I have to be the best version of myself and that I will become
Kommentare